SCIENCE AND SOCIETY SYMPOSIUM

06/11/2022
8:30h - 12:00h
Plenary Room

 Included in the Conference registration  Registration for in-person attendance: 10 USD
Registration for virtual attendance: Free 

Scientific Program

8h30- 8h35- Introduction
Anne-Sophie Rebillat and María Carmona-Iragui, co-chairs S&S Committee T21RS

8h35- 8h40- Opening
Theresa Mabie

8h40- 9h10- Presentations

DS and Covid-19, including psychosocial impact
Dr. Sujay Ghosh, University of Calcutta, India

Therapeutics: IVIG treatment for regression
Dr. Jonathan Santoro, Childrens Hospital Los Angeles, USA

9h10- 10:00- Panel discussion on research participation: Why families’ participation in Down syndrome research is key and how you can get involved

On the importance of research participation
Hampus Hillerstrom, President & CEO, LuMind IDSC

Introduction of the clinical trial networks
Hampus Hillerstrom, President & CEO, LuMind IDSC

Dr. Andre Strydom, King’s College, London, UK
Dr. Michael Rafii, University Southern California, USA

Importance of Brain Biobank and how it works
Dr. Lotta Granholm, University of Colorado, USA

EBRA T21 cluster (European Brain Research Area)
Dr. Mara Dierssen, Centre for Genomic Regulation- CRG, Barcelona, Spain
Dr. Marie-Claude Potier, Institut du Cerveau - Paris Brain Institute, France

Testimonials from research participants in Europe and the USA
Coordinated by Dr. Isabel Barroeta, Hospital Sant Pau, Barcelona, Spain

Panel discussion with all the speakers
Moderated by Hampus Hillerstrom and Isabel Barroeta

10h00- 10h30- Coffee break

10h30- 11h00 - Presentations

Physical activity and impact of exercise on cognition
Dr. Sarah Pape, King’s College, London, UK

Innovative treatments for sleep apnea disease. Presentation of DSC2U
Dr. Brian Skotko, Massachusetts General Hospital

11h00- 11h30- Hollywood panel
Moderated by Eric Rubenstein
Guests: Cole Sibus, actor, Los Anteles, CA, USA.
Blair Williamson, actor, Los Angeles, CA, USA.
Gail Williamson, talent agent, Los Angeles, CA, USA.

11h30- 11h40- Cultural program: Music show
Sujeet Desai, Musician & Motivational speaker, Williamsville, NY, USA

11h40 – 11h55- Video with highlights of the conference

11:55- 12:00- Closing
Anne-Sophie Rebillat and María Carmona-Iragui, co-chairs S&S Committee T21RS

Speakers

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Dr. Sujay Ghosh

University of Calcutta
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Dr. Jonathan Santoro

Childrens Hospital Los Angeles
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Hampus Hillerstrom

President & CEO LuMind IDSC Foundation
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Dr. Andre Strydom

King's College London
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Dr. Michael Rafii

Alzheimer's Therapeutic Research Institute Keck School of Medicine of USC
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Dr. Lotta Granholm

University Of Colorado Anschutz
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Maria del Mar Dierssen Sotos

Centre For Genomic Regulation
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Dr. Marie-Claude Potier

Paris Brain Institute, Icm
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Isabel Barroeta

Hospital Sant Pau
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Dr. Sarah Pape

King's College London
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Dr. Brian Skotko

Massachusetts General Hospital
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Dr. Eric Rubenstein

Boston University
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Theresa Mabie

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Cole Sibus

Actor, Los Angeles, CA, USA
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Blair Williamson

Actor, Los Angeles, CA, USA
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Gail Williamson

Talent agent, Los Angeles, CA, USA
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Sujeet Desai

Musician & Motivational Speaker

Registration

Included in the Conference registration fee

Registration for in-person attendance:

  10 USD

Registration Form for in-person attendance

Registration for virtual attendance:  

  Free of charge